Jody's Garden

Jody's Garden
"No Worries"................. On a Sunset Cruise off Na Pali.................. "You can click on the picture for a tour of what we saw and the fun we had..............." (If you are new to my blog, I post the most recent news or event first (or on top). If you are trying to catch up, you may want to start with my older posts first by clicking on the "Blog Archive" and choosing a title)

Wednesday, August 4, 2010

Day Plus Seven

Yesterday we met with the doctors on the BMT Team and asked them why Jody's ANC count had leveled out and stopped declining. Our concerns were that something was not happening and that should be happening. I am sure the doctors deal with this everyday.

Jody and I were told that we need to let the doctors know if anything, no matter how inconsequental, happens we need to let them know. They (the doctros and the nurses) have made Jody and I concerned about all kinds of aches, pains, and germs. We are constantly looking for changes to her body, and are cautious about everything. So we always ask questions... lots and lots of questions.

Dr. Matous informed us everything was going to plan. He told us that Jody's ANC may not drop to zero and her platelets may not go below a 100. It was OK if it did, but it may not.

The best way I can describe it to you is there are two intersecting lines... One is her ANC going down and the other is the donors cells, which are kicking in and going up. Once her cells get down to a certain level and the donor cells begin to take hold her ANC will again begin to climb. I know it is confusing... let me just say we are still on target. Jody's energy level is holding up for now, but it is due to drop and she will have to fight back. Jody and I are prepared to fight.

Jody's ANC is at 1155 and her platelets have not really changed and she is having another good day.  I just arrived at the hospital (3:30 pm) and Jody has walked her mile... OK mile and a half... Her appetite continues to be a challenge but she is working on it. Her weight has continued to drop.

Jody told me Dr. Matous saw her earlier today and said she is an awesome woman. (We knew it all along, it took him a week to figure it out.) I am dealing with her ego now.

Surprise, surprise, Jody has started a campaign to get her room (upgraded) changed. She has figured out that on the other side of the hall the windows face east and she is convinced the rooms are better. The nurse stopped by to say she can move tomorrow if she still wants to, so she is all about her move. She wants to call in "Two Men and a Truck" moving company.

"It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up -- that we will begin to live each day to the fullest, as if it was the only one we had."
- Elisabeth Kubler-Ross

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